Model PHR Privacy Notice Available

Helps Consumers Compare Personal Health Record Vendors
Model PHR Privacy Notice Available
In an attempt to make it easier to compare the privacy practices of personal health records vendors, the Office of the National Coordinator for Health Information Technology has created a model privacy notice.

The model is intended to provide a template for privacy information, much as the nutrition labels on food, Jodi Daniel, ONC's director of policy and planning, said at a Health IT Policy Committee meeting this week. She says three vendors have committed to using the voluntary model: Microsoft HealthVault, Dossia and

The ONC website describes the two goals of the project as "To increase consumers' awareness of PHR companies' data practices; and to empower consumers by providing them with an easy way to compare the data practices of two or more PHR companies."

The site includes:

  • A background document about the project;
  • A model privacy notice template;
  • An implementation guide;
  • A reference manual for consumers.

The background document notes the PHR Model Privacy Notice "provides a uniform and easy-to-understand approach for PHR companies to be transparent about certain key privacy and security issues. By making this model notice available, PHR companies can help build greater trust in PHRs and promote competition on policies that are more consumer-protective."

Unlike an electronic health record, which is created and maintained by a healthcare provider, a personal health record enables a patient to maintain and manage their health information from multiple sources, including data they enter themselves.

About the Author

Howard Anderson

Howard Anderson

News Editor, ISMG

Anderson is news editor of Information Security Media Group and was founding editor of HealthcareInfoSecurity and DataBreachToday. He has more than 40 years of journalism experience, with a focus on healthcare information technology issues. Before launching HealthcareInfoSecurity, he served as founding editor of Health Data Management magazine, where he worked for 17 years, and he served in leadership roles at several other healthcare magazines and newspapers.

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